on 16 Jul 1996
Last Applicant/ Owned by
The Society for Mucopolysaccharide Diseases
MPS House, Repton Place, White Lion Road
Amersham, Bucks, HP7 9LP
Serial Number
UK00002105107 filed on 16th Jul 1996
Registration Number
UK00002105107 registered on
03rd Jan 1997
Charitable fund-raising on behalf of the Society for Mucopolysaccharide Diseases; provision of grants to families in need, being members of the aforesaid society.
Family holiday; teenage activity holidays; all organised on an annual basis for groups of Mucopolysaccharide Disease Society families by the Society itself.
Provision of educational material on mucopolysaccharide diseases and related disorders; training for trustees, area support families, employees and volunteers in all aspects of mucopolysaccharide disease and related disorders, including bereavement; organisation of conferences and training days for professionals, volunteers and Mucopolysaccharide Disease Society families in all aspects of mucopolysaccharide disease and related disorders.
Supporting medical research, including provision of access to the European Database for MPS Diseases; advice and counselling for families affected by mucopolysaccharide disease; organisation of care and support at Mucopolysaccharide Disease Society "family days" and "Childhood Wood" Clinic; provision of care and support to families at Mucopolysaccharide Disease Society clinics.
UK00002105107
Figurative
Individual